Tuesday, December 22, 2020

 And now this, from Andy:

After about 14 different phone calls, including to the hospital ombudsman, I finally got a call from the palliative care specialist at the hospital, Dr. Dunkel. He has taken a more active role in Mom‘s care today and has made sure that the pharmacy and the care team know what is necessary and what to look for. He observed that it can be a “constant struggle“ to educate (also his word) the bedside people since under ordinary circumstances Mom would be in hospice, cared for by providers who are more familiar with her situation and who have a different mindset than how how most ICU nurses and even physicians are trained. Unfortunately because of the Covid diagnosis she is not eligible for hospice.  For example, he noted that in hospice care, you are much less concerned about the rate of respiration than you are with how hard they look to be trying to breathe. It is only the latter that is of concern in hospice, not the former (of course all of this you can take with a grain of salt since I am likely not doing justice to what he told me). He also said that as important as the morphine is, the medication to treat anxiety and confusion (Lorazepam) is equally important and he is making sure Mom gets that as necessary. He said that we are likely only hours away but it could be longer.  Emily (God bless her) is going to go by the hospital and look in on Mom after she gets off work; it will undoubtedly be helpful that she will be wearing her full Johns Hopkins nursing regalia!

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